EULAR PARE Webinar - Pregnancy and Family Planning

Dear friends and colleagues,

We are delighted to invite you to join the second Young PARE 2023 webinar on the topic of "Pregnancy and Family Planning”.

There is an increasing focus on topics related to reproductive health and family planning in patients with autoimmune, rheumatic and musculoskeletal diseases (RMD). Both patients, physicians and the broader multidisciplinary team recognize the challenges in communication about reproductive issues. You can get more information from rheumatologists specialising in the topic and listen to two personal stories.

Dr. Laura Andreoli and Dr. Karen Schreiber are co-leaders of the EULAR Study Group on Reproductive Health and Family Planning. Dr. Andreoli is a rheumatologist, and since 2006 she has been working in the Pregnancy Clinic in Brescia (joined team of rheumatologists, gynecologists, neonatologists), which is dedicated to the management of pregnancy in patients with inflammatory arthritis and systemic autoimmune diseases, and to the study of predictors of outcome and implications of the use of anti-rheumatic drugs (conventional and biologic) in pregnant patients.

Dr. Karen Schreiber’s main clinical and research focus is on improving reproductive health care for patients with rheumatic diseases. Her main passion is the pathophysiology and treatment of thrombotic and obstetric antiphospholipid syndrome (APS). Karen is managing the only interventional trial of hydroxychloroquine (HCQ) in pregnant women with antiphospholipid antibodies to answer the question whether HCQ improves pregnancy outcomes in these women. 

Sara Badreh is a Young PARE alumna and member of the EULAR PARE Committee. She is a lupus patient herself and was diagnosed at the age of 16 and is very passionate about patient advocacy and how to best link the patient needs with the scientific perspective. Sara gave birth to her first son, Elias, in 2022.  

Sladana Rumpl Tunjic is Young PARE member, member of EULAR PARE Committee and EULAR Quality of Care Committee. She is a vice president of the Association Remisija since 2017 and dealing with young people with RMDs. Her goal is to raise awareness of children and young people with RMDs, helping them to get biological therapy and to improve life quality.

 

The webinar will last 60min and takes place on Thursday, 13 April, 19:00 CET.

 

Agenda

Topic	Speaker	Time
Welcome and Introduction	Sladana Rumpl Tunjic	2 min
The EULAR Study Group on Reproductive Health & Family Planning (ReHFaP): working together on the unmet needs of people living with rheumatic diseases	Laura Andreoli and Karen Schreiber	15 min
Being pregnant while having Lupus	Sara Badreh	15 min
Life without children	Sladana Rumpl Tunjic	15 min
Roundtable discussion		13 min

 

 

The webinar will be run through the PARE Events Platform – please register and create your account here (if you haven’t registered already). Please note that there is one internal step to approve your registration needed, so the confirmation e-mail might take some time to arrive into your mailbox. Please be patient and register as soon as possible. You will need to register only once, your account will be active for future PARE events. When you are in the PARE Events Platform, please self-enrol to the Young PARE Webinars.

 

If you experience any problems with the registration or enrolment, please contact us at pare@eular.org. 

Also, feel free to share this email with your colleagues or with other patient organisation representatives or interested members!

Meeting guidance:

• Please try to join the webinar with your computer.
• If you are an apple device user, please download the MS Teams app before attempting to enter the meeting.
• Please mute yourself when joining or you will be muted automatically.
• Please turn off your camera when joining as this might ensure a better connection.
• If you would like to ask a question, please write it on the meeting chat.
• If you experience any technical difficulties, please contact pare@eular.org.  
• Please note that the meeting will be recorded and published online.

 

Many thanks in advance, and we look forward to meeting with you virtually again very soon!